Photo & story by yapembe yagabo
Shatavia's Version of Twelve
Shatavia Barber a 12 year old girl was diagnosed with Spina Bifida before she was even born. However, this physical disability doesn't limit her as much as you would think.
Barber has been playing the violin for two years. She first discovered her passion for it when it was offered in elementary school and has continued playing into middle school.
Barber’s support for her independence is reflected in features throughout the home, including her bathroom. Her sink is set at the perfect height, allowing her to complete daily tasks on her own. Her mother, Shalana Page, spoke with the realtor prior to purchasing the house to ensure these accommodations were in place. “That was a requirement I had before purchasing the house,” Page said.
Barber has been in physical therapy since she was just months old. Due to her diagnosis, she does not have fully developed nerves to control movement and sensation. During therapy sessions, Barber practices assisted walking, with her therapist, Taylor Bruce, supporting her. To lighten the mood, Bruce suggests playing some music. Page responds, “I think that’s a great idea.” However, Barber feels differently. “We’re in a hospital, Mom you’re so embarrassing.”
After hitting a personal record and walking 315 feet, Barber is exhausted. Her mother says, “You’ve got to learn how to build your stamina back up,” to which Barber replies, “I know, but I’m still tired.”
Before lunch period begins, Barber waits until the hallways are mostly clear before going into the cafeteria.
Barber and her friends (left) DeeAsia and (right) Zyia are eating lunch when an erupt sound happens. While students are yelling and running around Barber says, “ I don’t know what they’re on today.”
Surrounded by her cousins, Barber plays on the merry-go-round built just for her. After attending Parker Bennett Camp, she was disappointed that she couldn’t participate in many of the park activities because they weren’t accessible with her wheelchair. She brought this up to her mother, and they knew something had to change. On April 16, 2024, they spoke with city commissioners and the mayor about the lack of accessible parks. The following summer, in 2025, a park was created for children like her. “I look at what I created, and I feel amazing.”
Page wanted Barber to understand that she is not limited by her wheelchair. About three years ago, she introduced the idea of starting a lemonade business, hoping to teach her about entrepreneurship. Since then, it has become a community favorite.
Barber often visits her stepdad at his barbershop. Since meeting her at 2 months old, he has played a major role in her life. He has organized various awareness benefits in her name under the hashtag “Stand Up 4 Shatavia.” He knew he wanted to be a part of making the world more accessible for her.
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